One of the truisms about having children in general – and especially when you have children with special needs – is that being a parent can do horrible things to your relationship in terms of giving time for one another.
I’m not saying that I regret having kids – the Monster and R are wonderful critters who make life fun, and I adore being a father and spending time with them. But, it definitely puts a cramp on spending meaningful time with my wife, both in terms of mood and energy, and when you factor in the attempts we make to still sustain independent lives for ourselves in addition to our marriage… it’s a lot.
So a while ago, the wife and I decided that we had to make an attempt on a regular basis to actually get away and spend time together. Continue reading →
I’ve been in diversity training this week, and these kinds of sessions are the kind where everyone is having to suffer through two long days of ‘training’ to teach you the things you should have already learned. As such, there’re plenty of people I don’t know in the room from different departments, minding their own business and just trying to survive to get out of the session without doing too much…
… and then across the room, I noticed that one of the others was wearing their ID badge on a puzzle-piece lanyard. Continue reading →
So, it should be apparent when you’re reading my blog, that I don’t do all of this by myself. (If you’ve not noticed mention of my wife, then you’re… not reading often enough.) And on this day, it’s important to remember that she is there, part of everything that’s going on.
Because, truthfully, I wouldn’t be able to be a fraction of the father that I am, if it weren’t for her being the mother that she is.
Long-time readers are aware that I’ve taken a lot of “me” time this year – I’ve been putting some real effort behind another passion of mine (curling) and taking time to pursue it. This has had me gone for a couple of weekends, leaving the burden on her to watch the kids, and so turnabout’s fair play. And while she won’t take a weekend to herself, the least I can do is take the kids for periods of time on the weekend to give her a breather. Continue reading →
It’s rare that I’m unaware that the Monster is different from other children.
I’m somewhat accustomed to the matter, and his Autism is a fact of my life. I’ve spent a lot of time coming to grips with the fact that this is our “normal”, and that, as I say to the wife, there’s even less purpose than normal of trying to compare him to other children. My wife’s the one who tends to get a bit more upset when there are kids his age who are doing things he can’t… or when there’s the kvelling by her friends about what their child’s doing, when the Monster’s still barely verbal and can’t really read.
Look, the fact that it took this much fighting to get to this point, when there is so much evidence of the fact that he’s needed more help all along, tells me that the system is absolutely, positively broken.The law requires that students with disabilities get a “Free and Appropriate Public Education” (FAPE), and according to national standards, Maryland is “meeting requirements”.But there’s something that’s missed in the midst of all of this – the Monster is only getting the help he needs because my wife and I dug our heels in and fought.Continue reading →
And now, the explanation for why I’ve been so quiet.
Two months ago, I last posted about the IEP process (see IEP Year Four) and where it had gotten to… and then I promptly got very, very quiet about the process.Yes, other things happened in the meantime – my wife and I went on vacation, and then I went off to curling trials, but my posting hadn’t come back up to normal frequency.
That’s because things went absolutely sideways after our last IEP meeting. Continue reading →