Getting What You Ask For

Repeat this mantra – “non-verbal does not mean mute”.

I’m constantly surprised at how folks comment on how ‘verbal’ the Monster is, without understanding that while he can say a great deal, he doesn’t communicate a lot.  He does have words, but they’re often hard to pull from him to get at the crux of what he wants at any given moment.  Like a lot of parents, we frequently grumble about how we wish he’d just tell us what he wants.

Well, we got our wish this week. Continue reading

Earworm

One of the Monster’s talents we’ve noticed, a long time ago, is his ability to remember and reproduce music.

At one point, we’d investigated music therapy for him, but discontinued it when his schedule got more pressing and it didn’t seem to be having an effect.  But throughout, we’ve continued to notice that he has little… tunes caught in his head. Continue reading

Taking the Plunge

Taking a trip with the kids is nothing new for us – we’ve tried to fit some kind of real trip in to the kids’ schedule every year, as we try to keep things as ‘normal’ as we can, even in the situation.  None of these really have been big ‘vacation-trip’ things like a lot of other families with children our kids’ ages do, though.

But, to every thing and all.  We’ve decided to take the plunge and plan a real vacation-trip. Continue reading

Hit and Stick It

Curling, October 2016I… think it’s actually been a while since I last talked about the Monster and curling.  Whoa.

Quick recap – for those who haven’t been around for a while, I curl semi-competitively myself.  R and the Monster have been curling in our local club’s Middle Rockers program for the better part of two seasons now, and the Monster is the only child with a developmental disability that is in the program.  This has us running into interesting issues now and again, due to the Monster’s deficits, but… when you go from a place of ‘assume competence’ and ‘adapt where you can’… Continue reading

B’Kol Echad

Before anyone worries – it’s just been a very busy couple of weeks here, on this side of the screen. (All the better reason, if you don’t follow the Facebook page or the Twitter account, to do so – I’ve not been wholly quiet while I’ve been gone.) . But I’m going to try, now that things are calming down offline, to get back to a regular cadence and…

What?  What have we been up to?  Oh!

For starters, we took in an inclusive religious service last weekend, in advance of Purim. Continue reading

The Game

The Monster outside M&T Bank Stadium, December 2017As I mentioned last week, the Monster and I were offered the opportunity to catch a Ravens game, thanks to the kindness of a donor at The Arc Baltimore.  Last night was the game, and so we went.

I love football.  (I love most sports, frankly.)  As I mentioned, I grew up getting to go to sporting events now and again – from baseball to football to hockey and basketball – and seeing sports live is something I rather enjoy.  We’ve taken the Monster to baseball games, largely minor-league, previously… and it’s definitely easier when you are in a smaller facility where you can walk about and still see the field (and definitely more so when you’re going to these events as part of a group of children in similar situations).  A football stadium is not one of these kinds of things. Continue reading

Echoes of Childhood

I’m going to do something that might be… ill-advised next weekend, but reminds me a lot of my childhood.

A fond memory of my childhood was going to sports events with my father.  Dad had season tickets to the local basketball and football teams, and we had neighbors who gave us tickets to go to the occasional baseball game.  As a result, I spent a lot of time seeing sports live – the way they’re really meant to be seen – and… well, given that I grew up further north than where I live now, a lot of the football, therefore, was outside in the winter, bundled down in a seat and cheering on my team, and as a relatively neurotypical child, I could easily handle being out there in the cold and crowd for a few hours. Continue reading