Wait, what?

I never quite know what to expect when I take the Monster out in public.

The truth is, I feel like greater than fifty percent of folks seem to assume that the Monster is listening to music or something (at least based on the ones who decide to say something about his headphones).  Even the people who realize that he’s not a ‘normal’ child, though, I have this little thing in the back of my head about trying to figure out what they make of him when he’s out in public.

And still sometimes, I get pleasantly surprised. Continue reading

Giving It A Try

The Monster’s started his third year of ‘real’ Hebrew school this week.

When I was… well, when i was closer to R’s age than the Monster’s, I started Hebrew school – first once a week, and then thrice a week as I got to third grade.  The goal was to make sure that I arrived at my Bar Mitzvah armed with basic knowledge of ritual, Jewish history, and Hebrew, and was able to function in a synagogue as I got older.

And that’s where the questions about the Monster and Hebrew school really intersect. Continue reading

Getting What You Ask For

Repeat this mantra – “non-verbal does not mean mute”.

I’m constantly surprised at how folks comment on how ‘verbal’ the Monster is, without understanding that while he can say a great deal, he doesn’t communicate a lot.  He does have words, but they’re often hard to pull from him to get at the crux of what he wants at any given moment.  Like a lot of parents, we frequently grumble about how we wish he’d just tell us what he wants.

Well, we got our wish this week. Continue reading

Earworm

One of the Monster’s talents we’ve noticed, a long time ago, is his ability to remember and reproduce music.

At one point, we’d investigated music therapy for him, but discontinued it when his schedule got more pressing and it didn’t seem to be having an effect.  But throughout, we’ve continued to notice that he has little… tunes caught in his head. Continue reading

Taking the Plunge

Taking a trip with the kids is nothing new for us – we’ve tried to fit some kind of real trip in to the kids’ schedule every year, as we try to keep things as ‘normal’ as we can, even in the situation.  None of these really have been big ‘vacation-trip’ things like a lot of other families with children our kids’ ages do, though.

But, to every thing and all.  We’ve decided to take the plunge and plan a real vacation-trip. Continue reading

Hit and Stick It

Curling, October 2016I… think it’s actually been a while since I last talked about the Monster and curling.  Whoa.

Quick recap – for those who haven’t been around for a while, I curl semi-competitively myself.  R and the Monster have been curling in our local club’s Middle Rockers program for the better part of two seasons now, and the Monster is the only child with a developmental disability that is in the program.  This has us running into interesting issues now and again, due to the Monster’s deficits, but… when you go from a place of ‘assume competence’ and ‘adapt where you can’… Continue reading