Curl On This

It’s been a while since I last posted – I got distracted with a few very packed weeks at work and in my personal life (largely the latter, almost entirely for good, and just the nature of life sometimes).  But now that things are quieting down a bit…

This weekend was another outing to the curling rink with both boys.  R is slowly getting it… but the news is that I had an epiphany about the Monster on the ice. Continue reading

Slip Sliding Away…

Curling, October 2016So, it’s happened.

R started curling three weeks ago, and… well, is doing as well as you’d imagine a four year old doing on his first time out.  He’s watched enough to have an idea of what it looks like, but putting that into practice is a wholly different thing.  But the idea of getting curling has been motivating him since, and that makes me quite, quite happy.  We took a week off for an ASBC social, and then… we went again last Sunday, this time with the Monster.

So it’s official – my Monster is now a curler. Continue reading

Time to Begin Again

Monster at shul, Simchat Torah, 2016As I mentioned a few weeks ago, we’ve started the Monster with Hebrew school at our shul.  He’s had some basic “religious school” through an after-school program at his regular school, but this year was time for us to get a little more serious with it.  He’s not had any objections to it so far, and the teachers have been telling us that he’s doing alright.

But part of the goal is also getting him more comfortable with coming to the building and being around celebrations, and… well, Simchat Torah is one of the easier times for him to be involved. Continue reading

Through the Cracks

Out of sight, out of mind.

At one point, I thought that the idea of mainstreaming the Monster was the dream we should be reaching for – that he’d do better with his normally-abled peers and that they’d get a better idea of how to live with children with special needs like him.  That was before the disastrous wake-up call that we got, in the form of a year wasted, which ended up with his being sent to a “non-public placement”, a private school paid for by the city school system, where he’s doing far better.

The problem?  The Monster and children like him are all but invisible to the school district. Continue reading

Home Not-Alone

monsteroncouchI’m very fortunate to have a flexible job that lets me work from home when need-be.  Even as a manager, since my teammates also can work from home (which they often do on Fridays), I can settle in at the dining room table with my laptop and get my work done, which frees me up to watch the kids if they’re home from school, and frees my wife up to get things done.

It also gives me interesting insight sometimes into the Monster. Continue reading

Flying Semi-Solo

Me, the wife and R, JCC ECE Color Run, September 2016It’s hard to be the sibling of a child with special needs, methinks.

Most of the time, just because of their ages and the nature of things, R and the Monster end up doing the same things (outside of school).  If we plan an activity, it’s set up for all of us to go together and… there are advantages and disadvantages. Continue reading

Changes with Age

Monster at the Salisbury Zoo, August 2016We’re back from a week-plus away from home, first at a family event and then for a week down the Shore.  (As anyone with children will remind you – when you have kids, it’s not a vacation but a trip.)  Which means it’s time for me to get back into the swing of things, especially as the Monster returns to school this morning.

But having ten straight days with the Monster gives me a different view into his life and how he experiences the world.

Continue reading

Appropriate Play

R and Monster playing, Aug 2016It’s almost a given, perhaps, that the Monster doesn’t often engage in “appropriate play”.  Like many children with Autism, he’s often more fascinated by parts of things, rather than the thing itself.  He’s inclined to sort game pieces or toys by type or color or some trait he’s selected as he might be to play with it in a manner that approaches “appropriate”, but… it’s how things are.
Continue reading

Do the Thing! Win the Points!

IMG_1720We’re almost to my sport season… and this year may be different…

… because I might try to teach both kids to sport this year.

Yes, yes, I know.  One of my former directors at work used to take me aside now and again, put his hand on my shoulder, and say, “[Dad], we are a desert people.  We do not do ice sports.”  And yet, here we are, dear friends, here we are. Continue reading