Fixing Things

Today was the first day of school since Spring Break.  The Monster got onto his bus without any fuss this morning, and we’re grateful for that.  (We’ll see how grateful his teachers are.)

Today’s also the day that his regular IEP chair, Ms. R, returned, and so bright and early, I fired off a request to her for a team meeting to discuss the massively screwed-up Individualized Education Plan (MSIEP). Continue reading

Pull Up Your Pants!

Setting aside the occasional accident, things are getting better on the toileting front of late.

We’ve gotten back to the point that he is, by and large, avoiding accidents during the day while he was home on break.  We’ve had a few messes – and we suspect those were mostly because he wasn’t feeling well and not quite communicative about the matter – but most of the time, we’ve either gotten a verbal insistence that it’s bathroom time or he’s given non-verbal cues. Continue reading

Handy…

I don’t remember when – or how – I found out that I was right handed.  I happen to have a parent who is left-handed, but I ended up a righty.  My wife, likewise, is a righty, but statistically, there’s roughly a 17% chance that either of our kids could still end up a southpaw.

Somehow, along the way, the Monster’s in-school OT has become convinced that he’s a righty, but I’m not so sure. Continue reading

Not Quite Kosher

We’re halfway through Passover, and… well, it’s going interestingly.

We knew, coming into the holiday, that it was going to be a challenge with trying to get the kids to increasingly observe the traditions of the holiday.  R, of course, doesn’t know any better, being two.  The Monster, though, is getting to the point that we can try to teach him about the holiday, and try to find foods that work with his picky eating habits. Continue reading

Schedule Scatter

This week is spring break at the Baltimore City schools.  This means that the Monster’s been home without his regular schedule to give him some sort of regulation.

Now, because I’m hardly cruel, I did take off two days this week, and I’ve been working from home when she has both kids awake.  Only seems fair to me, really.  So we’ve been trying to find things to do, so that the Monster has other things to fill his time besides those things he’s already perseverating on. Continue reading

Chasing Dreams

What I hear a lot from other parents of children with developmental disabilities – and disabilities in general – is about how they’ve had to put so much of their lives on hold for their children.  I’m not quite talking just about the usual “well, we have kids so we can’t do X, Y and Z anymore,” and more about the “well, there goes that” kind of attitude.

I think that’s part of the problem and weight that we shoulder with a child who has difficulties.  It’s one thing to compromise our own hopes and dreams to concentrate on our kids, it’s another to set them wholly on the wayside. It’s that weight that makes it so hard to bear.

We have to have freedom to pursue our dreams… else you’re just living for your kids. Continue reading

Autism at the Ballpark – Baltimore Orioles

So, it’s April.  And if it’s April and Autism Awareness Month, it must be time for major sports franchises to be doing “Autism Awareness Day/Night” at the ballpark.

For some strange reason, the Baltimore Orioles decided to do a night game.  I don’t know about you, but the Monster and R don’t cope well after about, oh, 8:30 at night, so 7:35 start times don’t do me much good.  On the other hand, Autism Society of Baltimore/Chesapeake arranged for group tickets for the 1:35 PM game today, so we took the kids to the ballpark for today’s rubber match against the Toronto Blue Jays. Continue reading

Spectrum of Support

So I’m going to wade into the whole thing from last night that blew up (yet again), my Tweet feed, but let me come around to it slowly.

Obviously, being a large community (and, if you listen to the CDC prevalence rate, we’re getting larger faster!), there’s a slew of organizations in the Autism space.  From local organizations to national ones, there’s a vast spectrum that we can pick from when we’re looking for somewhere to ‘belong’, and indeed, somewhere to give our money. Continue reading

Cure or No?

Earlier this weekend, my Twitter blew up with an argument over whether or not we need a “cure” for Autism.

It’s always interesting when you get into what I’d term “religious” arguments within the community.  Since getting into the community with the Monster’s diagnosis, I’ve noticed that people get very deeply invested into their points of view, to the point of being unwilling to see any evidence to the contrary at times. Continue reading