A few weeks ago, the Monster wandered off from us at Sesame Place when the park was extremely crowded.
The nature of the Monster’s Autism is that he’s limited in his ability to communicate with others. If prompted, he can tell you his name (first and last, but you often need to prompt him along), but he doesn’t know our phone numbers, our names, his home address… or at the very least, he doesn’t know how to share them with others.
We were very lucky, that afternoon, that park security found him and took him to Lost Parents, and that he was sufficiently communicative when I got there that he positively identified me as his father, but… in a larger amusement park, anyone could have found him, and we could have been running all over. And out in the wider world, if he were wandering in our neighborhood? Continue reading
It’s the nightmare for all parents. You’re somewhere, you turn around, and your child is… gone.
And it happened to us yesterday. Continue reading
Today’s IEP meeting was not really much of a change from what we had before.
The goal, to us, was to get the Monster an aide for next year. He’s moving back to his zone school, and while that’s a Good Thing, we’re really sure there are enough supports in place. Continue reading
On Thursdays, I pick the Monster up from school and take him to gymnastics.
In each case, this means navigating busy parking lots on foot. The school’s lot is nothing short of chaos, with parents in their personal cars and the larger busses steaming in and out of the lot and trying to navigate around in aisles that really aren’t large enough for the traffic that comes through. (Not to mention that folks can’t seem to be bothered to pay much attention to the painted arrows.) The lot over at Rebounders is a little less chaotic, but is a fairly confined space due again to the plot of land and its alignment next to two busy streets. Continue reading
Between last week and this week, we’ve been caught in something that feels a little bit like The Day After Tomorrow, even if it’s hardly living up to that kind of cinematic hype.
Despite the snow, the Monster didn’t get a chance really to go play in it. On Friday, it was entirely too cold for the kids to get out into it – it was bone-chillingly cold, and they don’t really tend to like to be too bundled up… or at least to wear gloves. Continue reading
Every other Sunday, the Monster goes to his program at the JCC for the afternoon. He gets to be supervised and do all kinds of social play, and an hour of swimming to boot at the end.
What always amuses me, though, is how he reacts when he comes out to meet me afterwards. Without fail, he tends to appear, and without a word to his counselor or to me, lets go of his counselor’s hand and comes over to take mine (even if it’s not offered yet) and quietly stands next to me until I do something about it. Continue reading
Last night, the wife and I were sitting around after the kids went to bed, checking out the news while playing around on Facebook. (Though, when did this become a thing, a married couple sitting in the same room, both perusing their own Facebook accounts on separate laptops?) Due to the groups that we’re in on Facebook and elsewhere, we were reading quite a bit about the search for Avonte Oquendo.
And that brought us back to the incident two weeks ago in our own lives. Continue reading
This is a follow up to yesterday’s post.
So, after I got home from work, I started crafting the email to the principal of the school to demand the termination of the two aides. Continue reading
As frequent readers here can tell you, getting my attention – my full attention – is a Bad Thing.
My wife and I are a team when it comes to the Monster and his various appointments, therapies, and whathaveyou. She’s the one that most folks deal with – she’s friendly, and nice, and inclined to want people to like her. Me, the warrior dad… I’m the one that things come to when there’s a Problem.
We have a Problem. Continue reading
Going to the Please Touch Museum brings out our major issue when we’re in public – the fact that our Monster is a runner.
In specific, if we’re not really paying attention to what he’s doing, he’s liable to take off in any given direction. Even with us paying attention, there were times that he dashed off and it took us a few moments to lock on to where he’d disappeared to. Continue reading