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Slow and Steady

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It’s a rare Saturday morning post from me, while I’m at home with both kids – the wife is at her book club while I’m watching the women’s National Championship final in curling by webstream.

Now, granted, I do wish I were in Philadelphia to watch it in person, the way I was able to two years ago, shortly after R was born.  Doing what we want is not always possible – something us parents with special needs kids understand very, very well – but it also lets me look back on how far we’ve come since the last time I was able to go in person. Continue reading →

No, F— YOU

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As you can tell from my title, it was not a good meeting this morning.

So Baltimore City Public Schools were delayed by two hours this morning on account of the snow and ice left over from yesterday’s not-quite-a-storm.  Expecting that this might wreak havoc with the meeting schedule – we had the IEP meeting at 9:30 today – I reached out to his teacher Ms. A, who in turn reached out to the interim IEP Chair to find out if we were actually going to meet today or if there’d be a rescheduling. Continue reading →

Food Fight

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So over the last few nights, the wife’s been filling out forms for when the Monster finally goes into feeding therapy.

As I’ve recounted several times, we’ve had issues on and off with the Monster’s diversity of eating.  We’ve gotten used to the lack of variety in his food choices, and for the most part, we can deal with it.  We’ve even had some vague broadening recently  – he’s discovered he likes oranges, cucumbers and carrots. Continue reading →

Simple Games

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My dad wasn’t exactly the rough-housing type.  I don’t have memories of wrestling with my dad or anything like that when I was a kid – certainly, my sibs and I did all kinds of things with/against each other, growing up, but nothing like that happened with my dad.  (That’s neither bad nor good, for the record. 😉 )

On the other hand, I tend to play a lot of physical games with the Monster and R.  Wrestling, tickling, tackling, things like that. Continue reading →

Bad Days

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It’s easy to express, when you’re an adult, that you’re having a bad day.

The Monster, on the other hand, hasn’t quite gotten to that level.  While we can infer what’s going on, that he’s having an awful day, we can’t tell what’s wrong or try to talk through what we can do to fix it. Continue reading →

Who They’re Messing With

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Today was the meeting with the IEP team to go over the triennial evaluations done on the Monster.

As I’d mentioned on Twitter, I was dreading today’s meeting.  We’ve known about it for a month or so, and to be honest, we’re fairly sure also of where the evaluations are going to lead in terms of what the plans are for the future (or at least how it should guide his IEP goals for the next few years).

The problem is the evaluations themselves. Continue reading →