Tomorrow is another trip to the feeding clinic, but there’s also whatever we can do at home to reinforce whatever is going on there.
My wife’s been working on giving him familiar foods in slightly unfamiliar forms. For those who haven’t experienced the Monster and his eating… things have to look the way he expects them to. Pizza needs to look somewhat like delivery pizza, and so-on. Continue reading
So, unfortunately, the Monster is a rather picky eater.
Finding something he’s going to eat is often a challenge. There are things that he’ll eat away from home – chicken fingers, for example – that he won’t touch in-house. Or the the appearance of those things has to be exactly the same each time he’s getting it, or he won’t treat it like the same, familiar food. This is getting to be a problem, since the diversity of what he’s eating is actually, gradually narrowing, rather than broadening as you would expect with a six year old. Continue reading
Today was the IEP meeting with the Monster’s new team at the Mount Washington School. We’re about six weeks into the school year, and it’s clear that we needed a checkup for the implementation of the program. The Monster is just not making much progress and that spells trouble.
So, first thought – going to the school is a lot different than when we used to go to Garrett Heights EMS. Aside from the fact that the office is literally right inside the main door, I was actually greeted by name by the woman at the desk, even as I was signing in. (Scary – that they know who’s expected for an appointment.) Continue reading
I’ve probably commented before on the matter, but it definitely bears bringing up again. Our children are habitually overscheduled, as it seems.
The Monster, with his difficulties, hasn’t yet discovered fun things like rec-league soccer or the like… but his schedules really do seem to fill up rapidly. Continue reading
Here in Maryland, we have this wonderful thing called LISS, otherwise known as Low Intensity Support Services. I’ve written about it before – LISS is a means for people with disabilities to receive funding for items not covered by insurance. This year, Maryland lowered the limit to $2000 (from $3000) to cover more individuals, and there are now two lotteries for coverage – one in July and one in January – instead of a first-come-first-served system in July.
The problem, despite this seemingly more fair system… is that none of us know what in Heaven’s name is going on. Continue reading
Today was the second day of Rosh Hashanah for 5775.
This year, in Baltimore, the city’s public schools were open for the first day of the holiday, meaning that the Monster was in class. The wife arranged for R to have a playdate with a friend from nursery school, and so… we actually got a day to sit in our actual seats in the congregation for a change. (Well, as much as ‘we’ could, given that my wife’s vocal ensemble was performing with the cantor.)
However, today was a professional development day in Baltimore City’s schools, and we ended up with both children coming with us to synagogue. Continue reading
And while we’re all doing these wacky turns around our lives with the children in them, the ones who need extra help, it comes back to bite oneself in the backside.
One of the things I absolutely harp on when I’m in my support groups is that parents need to find an outlet away from their children, lest they go crazy. Continue reading
The Monster’s homework is checked on Mondays, so we’ll admit that there are times that we slack a little bit in getting it done ‘on time’. Since he only has homework from Monday through Thursday nights, it’s easy enough to spread out four nights of homework over seven days and get it done in doses that he can cope with.
On the other hand, though, as we mentioned, his homework’s not really being adapted for his level. Continue reading
We’re four weeks into the school year, and things are slowly stabilizing.
The biggest thing that we miss from last year was the communication log that we had with Ms. A regarding the Monster’s conduct in class. Certainly, there is behavior charting in his folder, but the Monster has never been a problem in that sense. (Ms. H, his teacher this year, does it for all the students.) Continue reading
As another year’s High Holy Days starts to grow closer, obviously our thoughts start to turn back towards how to deal with the Monster and participation at synagogue.
(Now, my thoughts don’t just turn to this because we got our tickets for services on Saturday, but also because I had another occasion to be gabbai’ing, and because my in-laws were being honored for their fortieth wedding anniversary, my whole family came with me.)
We’re fortunate at our synagogue, as I’ve mentioned before on numerous occasions, to have a quiet room that’s well-situated so that parents can handle small children who aren’t up to participating in the services directly without missing the opportunity themselves to pray. Because the Monster is… unpredictable, we tend to migrate immediately there, rather than trying to get seated in the main sanctuary where he might disturb folks if he starts making noise. Continue reading