One of the things that occurred to me is that there’s really no one good, central resource for a list of events that are coming up for parents of children with special needs. (Every group seems to have a superset of their events and a few other groups, but… not all in one place) So I’m going to try to remember to post something at least once a month with what I know of, and… well, if any of my readership knows of additional events, please feel free to let me know and I’ll add them.
And, because not everything revolves around our children with special needs, I’ll post general-interest parenting things here too, if I’m attending (with or without the kids). Continue reading
I honestly don’t get it, sometimes.
Being the parent of a child with special needs is hard work, and the rate at which we burn ourselves out is probably legend. I hear complaints – constantly – through many of my groups about how tiring it is, and how they wish they could get some relief.
And then… no one shows up when there’s relief offered. Continue reading
A short while back, Autism with a Side of Fries asked a question, regarding things you’ve found that work well with our kids and whether or not you share them out. I was upfront with responding that I don’t ever hold back on any places that I find work well or accommodate my Monster nicely. I remember what it was like – and I’m constantly reminded when I find some place new – to not know of anything that lets us have something that’s a semblance of a normal life…
And on the flip side, there’s when I boggle at how folks don’t seem to know of some of the resources that exist.
As I mentioned a while back, the wife and I are hiring someone to watch the Monster and R while we’re out of town.
This is going to be our first vacation without the kids since… well, my sister’s wedding, back when we only had the Monster, and well before his diagnosis. (For reference, he was a 10 month old at the time, and stayed with his grandparents.) We’re fortunate enough to find someone with experience with children with Autism, coupled with the fact that the Monster is going to be out of the house for most of our time away, as he’ll be at camp from 8 AM to 5 PM each day.
Still, we’re trying to make it as easy as possible for the sitter, so the wife is making her all kinds of papers that talk about what passes for normal around the house.
I know I’ve whined enough about money this week, so. 😉
One of the things we had considered putting in our LISS request (the one that’s seemingly not going to be approved anyway) was for respite care. We’ve never actually taken respite before, but… well, it comes back to the question about getting a break for ourselves. Continue reading